Improving Quality of Care and Patient outcomes in Inflammatory Bowel Disease
ANZIBDC is a collaborative research program which aims to progress knowledge and clinical practice in the field of IBD through the combination of both clinical and scientific research, thus improving patient outcomes across the Australian and New Zealand populations. It was formed in 2008 and currently comprises of 17 Gastroenterology centres around Australia and New Zealand.
ANZIBDC has also established collaborations with European, North American and Asian IBD consortia who are undertaking similar work and made significant contributions to several international IBD studies.
ANZIBDC member centres currently provide IBD care for 20,000 patients which represents around 20% of the population with IBD within Australia and New Zealand.
Our main focus is to improve quality of clinical care and patient outcomes, and ultimately find a cure for people living with IBD.
One of the ANZIBDC's core values is improving patient quality of care and we undertake various projects which support this goal.
In partnership with Crohn’s Colitis Cure charity, ANZIBDC contributed to the developed a comprehensive cloud-based custom IBD Clinical Management Software called Crohn’s Colitis Care (CCCare)
A large number of the ANZIBDC sites now use the software which is designed with the aim to improve patient management and quality of IBD care around Australia New Zealand, as well as assisting research by enabling better data management.
ANZIBDC has bio-specimens (DNA) stored on approximately 8000 IBD patients, which are linked to their disease behaviour and therapy over time. Each ANZIBDC site contributes patient DNA, phenotype data and biological samples (such as blood, stool and tissue samples). By pooling these resources, ANZIBDC can undertake more complex and powerful research.